OFF THE WIRE
Hi, I am Megan,
I am a first time mom of an almost 3 month old baby boy named
Jonathan. My son was born with Cranialsyntosis, or more specifically
referred to in this case as Coronal Syntosis. Coronal Syntosis is a
premature fusion of a bone in the skull,so because of this he needs
Cranial and Facial surgery by Pediatric Neurosurgeons to correct the
misshape of my son's head,and to realign his nose. He will be under
doctors care for 2 years from the day of surgery,he will have to wear a
helmet for 23 hours a day for at least 18 months or more depends on the
out come from surgery,he will not be able to be a normal boy and
toddler for a long time,everything you will read and see is very
overwhelming to myself and it will be with you as well,this is a long
journey that I am in need of monetary and prayer support as this journey
with Jonathan goes ahead,this page is to be of knowledge as well as
prayers and going step by step with us through this. The insurance that
is carried only covers so much,I do want to thank all that can help in
either manner,as being a young mom that I am this is hard for me to do
but I am in need of help and trying to get through all of this as
well,my son is my life and I cannot imagine my life without him in it.I
have a paypal set up to where you can go to donate and send what you can
it is very much appreciated,I have and will post photos as Jonathan
goes though this long hard journey of the many surgeries and recoveries.
Thank you again so very much to be a part this page and our journey,God
Bless you
paypal information: nnora73031@att.net
Definition
By Mayo Clinic staffCraniosynostosis is a birth defect in which one or more of the joints between the bones of your infant's skull close prematurely, before your infant's brain is fully formed. When your baby has craniosynostosis, his or her brain can't grow in its natural shape and the head is misshapen.
Craniosynostosis can affect one or more of the joints in your infant's skull. In some cases, craniosynostosis is associated with an underlying brain abnormality that prevents the brain from growing properly.
Treating craniosynostosis usually means your infant needs surgery to separate the fused bones. If there's no underlying brain abnormality, the surgery allows the brain adequate space to grow and develop.
